The holidays are a time for thinking about everything you hope and wish for in the coming year. They’re also a time for appreciating everything you already have. As our season’s greetings to you, we wanted to share a wish expressed by each member of our management team. “I wish for every patient and family… Continue reading Holidays Wishes from PatientsLikeMe to You
Category: ALS
A Peek at the December Newsletters for Members
What kinds of things do we cover in our monthly newsletters for members? Take a look at the excerpt below from our December edition. Also, in case you didn’t know, anyone – whether a PatientsLikeMe member or not – can view our current and past newsletters in our Newsletter Archive. See what we’ve been up to… Continue reading A Peek at the December Newsletters for Members
Living with ALS: What We’ve Learned
Yesterday, our interview with ALS blogger and three-star member Rachael gave you a glimpse into what it’s like to live with ALS (Lou Gehrig’s disease). Today we take a closer look using the data and experiences shared by our 4,844 ALS members, who comprise the world’s largest online ALS population. ALS, which stands for amyotrophic… Continue reading Living with ALS: What We’ve Learned
Spotlighted Blogger: ALS Patient Rachael of “Notes to Self”
Welcome to the third installment of our new blog series featuring patient bloggers. Last week, we introduced you to Parkinson’s blogger Steve, and today, we’d like you to meet Rachael, a three-star member who has been a part of PatientsLikeMe’s flagship ALS community since the very beginning. In fact, she joined PatientsLikeMe in May 2006,… Continue reading Spotlighted Blogger: ALS Patient Rachael of “Notes to Self”
Coping with Holiday Stress and Blues
It’s the most wonderful time of the year. Or is it? The holidays can be a time of merriment and joy marked by festive parties and family reunions. But they can also be quite challenging. Despite the great cheer advertised everywhere you look, some people find themselves struggling with stress, anxiety, loneliness and/or depression. This… Continue reading Coping with Holiday Stress and Blues
What Patients Are Thankful For
Thanksgiving is a time for remembering all the reasons you have to be grateful. For patients who face numerous health challenges, this can mean reminding yourself of all the things you have gained – not lost – since your diagnosis. One theme that we’re especially proud to hear our 120,000+ members express is how thankful… Continue reading What Patients Are Thankful For
Giving Caregivers the Recognition They Deserve
“The true strength of the American family finds its roots in an unwavering commitment to care for one another.” – President Barack Obama November is National Family Caregivers Month, “a time to thank, support, educate and empower family caregivers.” There are more than 65 million family caregivers in the US who day in and day… Continue reading Giving Caregivers the Recognition They Deserve
It’s the Season for Seasonal Affective Disorder
Now that daylight savings time has ended, the days are shorter, and before you know it, it’s nightfall. Has this affected your mood? Seasonal affective disorder (SAD), also known as seasonal depression, is a condition marked by a period of depression that occurs during the same season year after year. In most cases, that season… Continue reading It’s the Season for Seasonal Affective Disorder
“A White Coat Affair”: A Wonderful Evening Celebrating ALS TDI
Last night, the PatientsLikeMe team came together for a great cause: the “White Coat Affair” gala benefit in support of the ALS Therapy Development Institute (ALS TDI). Founded by PatientsLikeMe Co-Founder and Chairman Jamie Heywood in 1999, ALS TDI is the world’s most advanced research laboratory dedicated to ALS. Held the night before the institute’s… Continue reading “A White Coat Affair”: A Wonderful Evening Celebrating ALS TDI
Moving Genetic Data Discovery Forward
In August, we proudly announced that PatientsLikeMe Research Scientist Catherine Brownstein, PhD, MPH, had won a prestigious “Young Investigator Award” from the International Congress for Human Genetics (ICHG). As promised, here is Catherine’s first-person report from the conference, held October 11-15, 2011, in Montreal. *********************************************************** The 12th International Congress for Human Genetics (ICHG) was a… Continue reading Moving Genetic Data Discovery Forward