The submissions are in and it’s now time for you to decide the winners of the first-ever PatientsLikeMe Video Contest! We asked “How has PatientsLikeMe changed your life?” and our members have worked long and hard to prepare their answers in these memorable videos. Take a look and vote for your favorite! PATIENTSLIKEME VIDEO CONTEST – VOTE HERE There… Continue reading PatientsLikeMe “Express Yourself” Video Contest: Cast Your Vote!
Category: ALS
Raise Your Awareness of ALS (Lou Gehrig’s Disease)
May is ALS Awareness Month. To help spread the word about this progressive neurodegenerative condition, which affects approximately five out of every 100,000 people worldwide, we wanted to tell you a little bit about our patients with ALS (amyotrophic lateral sclerosis). Due to our founders’ personal experience with this disease, ALS was the very first… Continue reading Raise Your Awareness of ALS (Lou Gehrig’s Disease)
One for All (Video): The Road Ahead at PatientsLikeMe
“We’re just getting started on a long road to really impact your individual disease and your quality of life…” Each week this month, we’ll be posting a video interview with a member of the PatientsLikeMe executive team. You’ll hear from Ben Heywood, Jamie Heywood, David S. Williams and Paul Wicks, Ph.D. about what the recent… Continue reading One for All (Video): The Road Ahead at PatientsLikeMe
PatientsLikeMe Refutes Published Clinical Trial
Congratulations to our R&D team here at PatientsLikeMe for its most recent paper published in Nature Biotechnology (“Accelerated clinical discovery using self-reported patient data collected online and a patient-matching algorithm”). The full paper has been made available by Nature so you can read the results and access all of the supplemental data and figures. Below are… Continue reading PatientsLikeMe Refutes Published Clinical Trial
Hawaii 5-0: PatientsLikeMe at AAN 2011
Here at PatientsLikeMe, we are not only focused on helping patients improve their health outcomes, but also on the cutting-edge research that enables those improvements. That’s why we couldn’t imagine better news when we learned that all five of our academic submissions to the American Academy of Neurology (AAN) were accepted for exhibition at their… Continue reading Hawaii 5-0: PatientsLikeMe at AAN 2011
PatientsLikeMeOnCall™: “A Look Ahead” at Openness in Healthcare (Episode 4)
“I think we can see there are a lot of ways where openness can be powerful. What’s necessary is to help facilitate openness and reduce the barriers to sharing medical information.” – Ben Heywood PatientsLikeMe Co-Founder Ben Heywood has blogged previously about openness and sharing – and how important they are for patients. In this… Continue reading PatientsLikeMeOnCall™: “A Look Ahead” at Openness in Healthcare (Episode 4)
PatientsLikeMe Calls All Patients With Any Condition to Join
Today, PatientsLikeMe announces its expansion in the following news release. (You can click on the image on the right to see a visualization of real-time profile views on PatientsLikeMe.) ***** CAMBRIDGE, MA–(Marketwire – April 11, 2011) – Today, PatientsLikeMe (www.patientslikeme.com) announces the expansion of its platform and invites patients with any condition to join. The five-year-old… Continue reading PatientsLikeMe Calls All Patients With Any Condition to Join
What Kind of Scars Do You Have?
A recent search of the PatientsLikeMe forum reveals that there are thousands of posts that mention the word “scar.” Looking closer, you’ll see that there are discussions of physical scars – for example, from certain procedures or diseases – as well emotional scars. One moving thread – entitled “A letter to help others understand you… Continue reading What Kind of Scars Do You Have?
Tell the World: The PatientsLikeMe “Express Yourself” Video Contest
It’s time to dust off your home video skills! We are excited to announce the first-ever PatientsLikeMe “Express Yourself” Video Contest. Every day, patients like you are sharing your health data and experiences at PatientsLikeMe in order to take control of your health and help others. Now we are inviting you to create a video… Continue reading Tell the World: The PatientsLikeMe “Express Yourself” Video Contest
PatientsLikeMeOnCall™: “A Look Ahead” at Patient Safety (Episode 3)
“What are the things that affect a patient’s safety? It’s everything – it’s not just whether the drug is good or bad, it’s the whole process.” –Jamie Heywood Why does the healthcare industry need to shift from drug safety to patient safety? PatientsLikeMe Co-Founder and Chairman Jamie Heywood explains his view in this week’s edition of… Continue reading PatientsLikeMeOnCall™: “A Look Ahead” at Patient Safety (Episode 3)