On Monday, we recognized World Psoriasis Day on our blog, and today we’d like to dig a little deeper into this lifelong autoimmune condition, which can cause skin lesions on almost any area of the body as well as psoriatic arthritis. Did you know that there are several types of psoriasis, and that they can… Continue reading The Five Different Types of Psoriasis
Category: Conditions
Living with a health condition? On the PatientsLikeMe blog, find helpful health information and patient stories about being diagnosed, trying different treatments, and living day-to-day with a chronic condition.
Leaving a Legacy of Data at PatientsLikeMe
Recently, our ALS community mourned the loss of Persevering, a highly proactive three-star member who was known for his unfailing efforts to support fellow patients, record and share data, report website problems and recruit ALS clinical trial participants. Offline, he was also a tireless advocate for ALS awareness and research, attending conferences and lobbying on… Continue reading Leaving a Legacy of Data at PatientsLikeMe
Putting Psoriasis on the Map for World Psoriasis Day
Today, October 29th, is World Psoriasis Day, sponsored by the International Federation of Psoriasis Associations. Here in the US, the National Psoriasis Foundation has created a special website – WorldofPsoriasis.com – for the occasion that illustrates the global nature of this chronic autoimmune disease, which affects 125 million people worldwide or nearly three percent of… Continue reading Putting Psoriasis on the Map for World Psoriasis Day
Spotlighted Author: Parkinson’s Humorist Bev Ribaudo on Dispensing Laughter
PatientsLikeMe member Bev Ribaudo (“YumaBev”) was diagnosed with Parkinson’s disease (PD) at age 47, but it hasn’t dampened her flair for comedy. “Humor comes naturally to me, and a little disease like Parkinson’s can’t take it away,” she says. In fact, her condition has given her a new purpose: entertaining other “Parkies” with her deep… Continue reading Spotlighted Author: Parkinson’s Humorist Bev Ribaudo on Dispensing Laughter
Art as Therapy in Parkinson’s Disease
Do you have a creative outlet that helps you cope with your health condition? Here are two examples of Parkinson’s disease (PD) patients in our community who are expressing their emotions through painting, despite hand tremors and other challenging symptoms. (See even more PD patient artwork in this inspiring forum thread.) “Iggy the Iguana” by… Continue reading Art as Therapy in Parkinson’s Disease
A Day in the Life of PatientsLikeMe Web Developer Adam Darowski
What’s it like to work at PatientsLikeMe? We are continuing to reveal just that with our monthly blog series “A Day in the Life,” which features PatientsLikeMe employees from different departments. Today we’d like to introduce you to Adam Darowski, a father of three who joined the technology team as a web developer exactly three years… Continue reading A Day in the Life of PatientsLikeMe Web Developer Adam Darowski
What to Do – and Not Do – When Someone Has a Mental Health Condition
Have you ever wondered how best to interact with someone who is living with depression, bipolar disorder or another mental health condition? Have you worried that you’re saying or doing the wrong things? Last week we recognized Mental Illness Awareness Week on the blog, and to continue our coverage, today we thought we’d share with… Continue reading What to Do – and Not Do – When Someone Has a Mental Health Condition
PatientsLikeMe Featured on Bloomberg TV
On October 9th, Bloomberg TV aired a four-and-a-half minute “Innovators” segment profiling PatientsLikeMe’s journey as company. Filmed partially in our office in Cambridge, Massachusetts, the piece features PatientsLikeMe Co-Founder and Chairman Jamie Heywood as well as Ed Sikov, a PatientsLikeMe member with Parkinson’s disease. Our thanks go to Bloomberg’s Nicole Lapin for her in-depth coverage… Continue reading PatientsLikeMe Featured on Bloomberg TV
Mental Illness Awareness Week 2012: Dismantling the Stigma
Did you know that one in four adults – or approximately 57.7 million Americans – experiences a mental health problem in any given year? Or that one in 17 lives with a serious, chronic mental illness? Since 1990, National Mental Illness Awareness Week has been recognized by the U.S. Congress as a time for mental… Continue reading Mental Illness Awareness Week 2012: Dismantling the Stigma
Rediscovering Life’s Simple Pleasures: An Interview with a Heart Patient
Last week, we recognized World Heart Day on the blog and discussed why there is an urgent need for awareness about heart disease and stroke, the world’s number one killer. We also talked about how heart disease can be an abstract concept until you are exposed to someone’s personal story. That’s why we are pleased… Continue reading Rediscovering Life’s Simple Pleasures: An Interview with a Heart Patient