Cambridge, MA, October 19, 2015—PatientsLikeMe has named 14 members to its patient-only 2015–2016 Team of Advisors and challenged them to work through an issue that’s central to everyone in the healthcare system: how to redefine patient partnerships. The team will be focused on rethinking what it means for patients to be partners, and on establishing… Continue reading PatientsLikeMe Names 2015-2016 Team of Advisors, Sets Focus on Redefining Patient Partnerships
Tag: lupus
Arthritis Awareness 101
You may have heard that arthritis affects the joints, but did you know that it’s an umbrella term used to describe over 100 medical conditions and diseases (known as rheumatic diseases)?1 Conditions that fall underneath forms of “arthritis” include rheumatoid arthritis, gout, lupus, and fibromyalgia. And the symptoms can vary depending on the type of arthritis and the person… Continue reading Arthritis Awareness 101
Putting on purple for lupus awareness
If you’ve got something purple to wear, today’s your day – the Lupus Foundation of America (LFA) is encouraging everyone to “Put on Purple” to help raise awareness for lupus. Lupus is an autoimmune disorder that affects millions of people worldwide, and the majority of these patients are women. Common symptoms include extreme fatigue, swollen… Continue reading Putting on purple for lupus awareness
Bruce Cooper and Ed Godber talk about the AstraZeneca/PatientsLikeMe partnership
AstraZeneca and PatientsLikeMe announced today that they’re working together to use patient-reported data to shape future medicines and help improve patient outcomes. While it focuses on an initial set of four therapeutic areas (lupus, respiratory diseases, oncology and diabetes) the partnership signals a significant step forward for patients worldwide. Bruce Cooper, AstraZeneca’s Senior Vice President,… Continue reading Bruce Cooper and Ed Godber talk about the AstraZeneca/PatientsLikeMe partnership
Spreading the word for arthritis
Lupus? Check. Fibromyalgia and ME/CFS? Check. ALS, cystic fibrosis, Huntington’s disease, mental health, schizophrenia, anxiety and depression? Check! There’s been a ton of awareness going on in May, but there’s still one more theme to go – National Arthritis Awareness Month. This month, the Arthritis Foundation (AF) is encouraging us all to spread the word to… Continue reading Spreading the word for arthritis
Taking action for lupus awareness in May
If you think you look good in purple, you’re in luck – today is Put on Purple Day, sponsored by the Lupus Foundation of America. As part of the greater Lupus Awareness (Action!) Month in May, today is your chance to make lupus visible and learn about the effects of this chronic inflammatory condition. Lupus… Continue reading Taking action for lupus awareness in May
“Band together for lupus awareness”
Lupus awareness has been observed since 1977. It was originally just one week in September. It’s since moved to October and now finally to May. And while the month may have changed, the message has always been the same; “raises awareness, secure funds and support those who are suffering” from this chronic inflammatory disorder. … Continue reading “Band together for lupus awareness”
Join the Band: Raising Our Voices for Lupus Awareness
“I was diagnosed with lupus (SLE) at age 20 and had already lost about 60% of my kidney function. I had chemotherapy for nine months along with intense steroid therapy. I thankfully went into remission and have been since four months after my diagnosis. I still struggle with fatigue and kidney problems although I was… Continue reading Join the Band: Raising Our Voices for Lupus Awareness
What Other Patients Are Saying About Solupred
Solupred is an international brand of prednisolone, a widely prescribed corticosteroid that modifies the body’s immune response and decreases inflammation. It is used to treat a host of inflammatory and autoimmune health conditions, including multiple sclerosis (acute exacerbations), organ rejection, lupus, psoriasis, asthma and ulcerative colitis. At PatientsLikeMe, where more than 120,000 patients are sharing… Continue reading What Other Patients Are Saying About Solupred