Did you know today is World AIDS Day? Thanks to the many different organizations (including those like AIDS.gov) recognizing the day and raising awareness about HIV and AIDS. Now a few years old, the PatientsLikeMe HIV community currently has more than 2,800 people with HIV sharing their health information to help others learn from their… Continue reading World AIDS Day 2010: Did you know…
Tag: PatientsLikeMe
“To Measure Is To Know”
Always check primary sources…. This was the title of a brief message sent to me from Paul Wicks, our head of research here at PatientsLikeMe. He was referring to a quote I have used as my email signature for the last few years; he had discovered I had wrongly attributed it to Archimedes. “To measure… Continue reading “To Measure Is To Know”
Epilepsy Awareness Month: The Beauty and The Turbulence
Did you know November is Epilepsy Awareness Month? In honor of the month and to help raise awareness of epilepsy, here is the first in a series of blogs about our Epilepsy Community members’ experiences with this disease. To kick us off, let’s meet tonialpha, a three-star member and PRO who recently sat down with… Continue reading Epilepsy Awareness Month: The Beauty and The Turbulence
What Data Do We Sell? A Continued Discussion about “Data Scraping”
In response to the Wall Street Journal article published last week, we’ve had a lot of great discussions about the role of honesty and transparency. Transparency is about you – members of the PatientsLikeMe community – knowing how we make money and what we do with the data you’ve entrusted to each other and PatientsLikeMe.… Continue reading What Data Do We Sell? A Continued Discussion about “Data Scraping”
New Podcast Series: “The Patient Voice” Premieres This Thursday
On Thursday October 7, 2010, the PatientsLikeMeOnCall TM podcast is proud to present a new series called “The Patient Voice.” Through these podcasts, you’ll hear emotional and inspiring stories from our community members that demonstrate the type of sharing and positive connections being made by patients on our site and how these connections are affecting… Continue reading New Podcast Series: “The Patient Voice” Premieres This Thursday
Drug Safety: It’s About More Than Just Compliance
Engaging in social media presents a number of uncertainties to pharmaceutical companies. In a world where much of the medical dialog has moved online, these uncertainties have emerged due to absent or unclear guidelines from the Federal Drug Administration (FDA), privacy and regulatory concerns about engaging directly with patients, and the potential for significant consequences.… Continue reading Drug Safety: It’s About More Than Just Compliance
Flickr-ing PatientsLikeMeInMotionTM
Ever wonder what your fellow members were up to on their sponsored walks and runs in various states across the country? Last week, PatientsLikeMe launched a Flickr page for the PatientsLikeMeInMotionTM program. Now you can see photos of members just like you in motion! We are excited to share the experience of sponsored teams and… Continue reading Flickr-ing PatientsLikeMeInMotionTM
All Aboard! Bringing PatientsLikeMe to Transplant “Gamers”
www.flickr.com 2010 Transplant Games photoset As you may know from reading Molly’s post last week, a few of us from the PatientsLikeMe staff recently attended the National Kidney Foundation’s 2010 U.S. Transplant Games in Madison, WI. In addition to supporting some of our current nonprofit and industry partners, PatientsLikeMe was an exhibitor at this year’s… Continue reading All Aboard! Bringing PatientsLikeMe to Transplant “Gamers”
PatientsLikeMe Gets into the Spirit of the Transplant Games
The spirit of Team Mid New England and the U.S. Transplant Games has infiltrated PatientsLikeMe! We have just gotten back from an amazing trip to Madison, WI to watch Team Mid New England take to the athletic fields and to spread the word about our transplants community at PatientsLikeMe. We had the opportunity to sponsor… Continue reading PatientsLikeMe Gets into the Spirit of the Transplant Games
Personalized Medicine: Making It All About You
Earlier this year, the University of Arizona hosted a unique meeting for scientists, policy makers, and law experts to explore the legal, ethical, and policy implications of personalized medicine. The opening keynote was by Dr. Lee Hartwell, 2001 Nobel Prize recipient in Medicine / Physiology and Director of the Fred Hutchinson Cancer Research Center and… Continue reading Personalized Medicine: Making It All About You