To continue our series in honor of Parkinson’s Awareness Month, here’s another interview to bring you “the patient voice.” We recently featured this interview with three-star member daddytom in the April edition of our Parkinson’s Community newsletter. Read on to learn what he has to say about finding courage, recognizing mentors and raising awareness about… Continue reading Tell the World: Daddytom Shares His Experiences with Parkinson’s
Tag: PatientsLikeMe
Tell The World: Parkinson’s Patients are “In Motion”
The PatientsLikeMeInMotion sponsorship program has been a tremendous success so far this year! Sponsorship requests from members participating in nonprofit events are flying in by the second from all over the country. It’s exciting to see our members are as active offline as they are online about raising awareness of their condition. The PatientsLikeMeInMotion program… Continue reading Tell The World: Parkinson’s Patients are “In Motion”
Tell the World: Parkinson’s Patients Unite Online and Off
At PatientsLikeMe, thousands of patients are uniting online to share health data, find patients like them, and to learn from one another. Since this is Parkinson’s Awareness Month, we wanted to highlight an off-line event that also represents unity – aptly named the Unity Walk. The annual event, which takes place next weekend in New… Continue reading Tell the World: Parkinson’s Patients Unite Online and Off
PatientsLikeMe – Out & About and OnCall
The PatientsLikeMe team has been traveling around the globe recently talking about the power of real-world patient data in changing healthcare. You may have heard about our executives at industry conferences, government hearings, or even on TV. Highlights below. Last month, PatientsLikeMe Co-founder and President Ben Heywood was on Fox Business News talking about how… Continue reading PatientsLikeMe – Out & About and OnCall
Capture and Share Your Transplant Journey
Following up on last week’s launch of the PatientsLikeMe Transplants Community, we present you with the next in our podcast series – PatientsLikeMe OnCallTM: Transplant Community Walk-Through. Podcast host, Aaron Fleishman, interviews Product Manager Maureen Oakes about new and upgraded functionality rolled out with the launch of this transplants community. Topics covered in this podcast… Continue reading Capture and Share Your Transplant Journey
It’s World Kidney Day! Share on…
It’s World Kidney Day 2010 – a global health awareness campaign focused on the importance of kidneys and prevention of kidney disease. According to www.world kidneyday.org, “Many people are currently not aware that their kidneys are damaged and they might find out too late. Dialysis and transplantation can be prevented if kidney diseases are detected… Continue reading It’s World Kidney Day! Share on…
PatientsLikeMe and Novartis Unite to Launch Community for Organ Transplant Recipients
Recognized by Fast Company as two of the 50 Most Innovative Companies in the World, PatientsLikeMe and Novartis have united to launch a new community for organ transplant recipients (including kidney, lung, heart and liver). In the news release announcement, PatientsLikeMe President Ben Heywood and Novartis CEO Joe Jimenez discuss what impact this community could… Continue reading PatientsLikeMe and Novartis Unite to Launch Community for Organ Transplant Recipients
Where are the Cures?
An interview with Myelin Repair Foundation
PatientsLikeMe partner, Myelin Repair Foundation (MRF), is a nonprofit organization devoted to reducing the time it takes to discover and develop treatments for multiple sclerosis (MS) patients. Recently, the MRF launched a campaign called “Where are the Cures?” – a site dedicated to a greater understanding of the barriers slowing the discovery and development of… Continue reading Where are the Cures?
An interview with Myelin Repair Foundation
FDA’s New Guidance on Patient-Reported Outcomes
We’re big fans of patient-reported outcomes (PROs) here at PatientsLikeMe, defined by the Food & Drug Administration (FDA) as: “A measurement based on a report that comes directly from the patient about the status of a patient’s health condition without amendment or interpretation of the patient’s response by a clinician or anyone else.” The self-report… Continue reading FDA’s New Guidance on Patient-Reported Outcomes
Who’s #2 in Healthcare Innovation?
You guessed it – PatientsLikeMe
It’s been an exciting few months for PatientsLikeMe. Here’s a quick recap… Today, Fast Company released its annual ranking of the 50 Most Innovative Companies in the World. PatientsLikeMe made #23 on the list alongside big league companies like Facebook, Disney, Novartis and Amazon. PatientsLikeMe was also named the second most innovative company in healthcare,… Continue reading Who’s #2 in Healthcare Innovation?
You guessed it – PatientsLikeMe