Category: Conditions

Living with a health condition? On the PatientsLikeMe blog, find helpful health information and patient stories about being diagnosed, trying different treatments, and living day-to-day with a chronic condition.

In her own words: Letitia shares about her new brain for Epilepsy Awareness Month

Have you met Letitia (Letitia81) from the epilepsy community? Four years ago, her research on PatientsLikeMe led her to the brain surgery that forever changed her life — she’s now seizure-free after three decades. Things are much different now for Letitia, and she’s written all about her before and after in a recent article for… Continue reading In her own words: Letitia shares about her new brain for Epilepsy Awareness Month

PatientsLikeMe Welcomes Next Patient Team of Advisors

  CAMBRIDGE, Mass, November 14, 2016—PatientsLikeMe has named 11 members to its patients-only 2016–2017 Team of Advisors, which this year will focus on elevating the patient voice. Team members will share their stories, participate in community initiatives, and give real world perspectives to our industry and research partners. “Each year, our Team of Advisors has proven… Continue reading PatientsLikeMe Welcomes Next Patient Team of Advisors

Patients at work: Member Jenny launches online craft shop on Etsy

  A few weeks ago, we kicked off a new blog series about patients who have started (or are working on launching) their own businesses. We’ll be featuring some enterprising members and learning more about how they manage their health and their career goals at the same time. Today, we’d like introduce Jenny, (jhound), a… Continue reading Patients at work: Member Jenny launches online craft shop on Etsy

“When the wind turns against you, adjust your sails” – Member Steve opens up about living with ALS

Say hello to Steve (sheronemus), a member of the ALS community who also struggles with depression. We recently caught up with him to learn about how his life has changed since his diagnosis, the importance of doing what you love and how he manages multiple conditions. Check out what he had to say about what… Continue reading “When the wind turns against you, adjust your sails” – Member Steve opens up about living with ALS

Behind the scenes of clinical trials: An interview with Dr. Ross Zafonte from Spaulding Rehabilitation Network

Have you ever been asked to take part in a clinical trial? According to a soon-to-be-published survey on PatientsLikeMe, most of our members (2 out of 3) have never even discussed taking part in a clinical trial with their physician and only about 1 in 5 have ever taken part in a clinical trial. This… Continue reading Behind the scenes of clinical trials: An interview with Dr. Ross Zafonte from Spaulding Rehabilitation Network

Breaking barriers on World Psoriasis Day

Back in 2004, a group of patient associations from around the world launched World Psoriasis Day. Conceived by patients, for patients, World Psoriasis Day is an international event that aims to give a voice to the more than 125 million people worldwide living with psoriasis and psoriatic arthritis. This year’s theme is breaking barriers. Psoriasis patients… Continue reading Breaking barriers on World Psoriasis Day

Can Eczema Spread?

Did you know October is Eczema Awareness Month? Eczema is an itchy, red rash that can appear all over the body and affects more than 30 million Americans, including children. Symptoms can often become less severe as children grow older, but sometimes, eczema can actually start in adulthood. There’s no cure, but in many cases… Continue reading Can Eczema Spread?

Patients at work: Member Ellen on launching her own clothing line

PatientsLikeMe members often talk about how they’re more than their diagnosis. They’re patients, but they’re also people, with complex lives, families, hobbies and careers. Today, we’re kicking off a series of blogs about that last one — working with a chronic condition. We’ll be featuring some enterprising members who have started (or are working on)… Continue reading Patients at work: Member Ellen on launching her own clothing line

PatientsLikeMe Launches Virtual Trial for ALS Patients

Study With Major Academic Medical Center to Evaluate the Potential of the Soy Peptide Lunasin to Reverse ALS Symptoms DURHAM, N.C., October 25, 2016—PatientsLikeMe and The Duke ALS Clinic have just completed enrollment in a virtual trial designed to test whether Lunasin, a peptide found in soy and some cereal grains, is helpful or harmful… Continue reading PatientsLikeMe Launches Virtual Trial for ALS Patients