Why I Joined a Clinical Trial In this edition of PatientsLikeMe’s series “Why I Joined a Clinical Trial,” we feature the story of Ginger Hermes Ortiz, who has been living with chronic myeloid leukemia and systemic lupus erythematosus. She shares why participating in one trial helped her learn how to manage the mental toll of… Continue reading How Participating in a Cancer Trial Gave Me a Life Skill That Helps Me Manage My Lupus
Tag: clinical trials
Being in a Clinical Trial Taught Me a Lot About My Disease
Why I Joined a Clinical Trial In this edition of PatientsLikeMe’s series “Why I Joined a Clinical Trial,” we feature the story of Ay Me Han, age 44, who was diagnosed with systemic lupus erythematosus at age 15. She explains why she’s always eager to participate in new research. My Story: Ay Me Han Every… Continue reading Being in a Clinical Trial Taught Me a Lot About My Disease
Genomics & Medicine: Your Questions Answered!
Recently, PatientsLikeMe’s Associate Director of Community Management, Brad Hornback, sat down with Dr. Eric Topol (Founder & Director at Scripps Research Translational Institute) and Christine Von Raesefeld (Patient Advocate) to discuss the topic of genomics and medicine, including how genomic data can affect the healthcare journey and how individuals may receive their own DNA results… Continue reading Genomics & Medicine: Your Questions Answered!
From preclinical to approval: How clinical trials bring new treatments to market
Often we hear of new treatments becoming available, but have you ever wondered what each new treatment had to go through to get approved by a regulatory body like the FDA? Before a new treatment is approved for commercialization, it needs to go through a meticulous trial process to prove a number of things: Is… Continue reading From preclinical to approval: How clinical trials bring new treatments to market
It’s Clinical Trials Day, and patients are driving change
Today is Clinical Trials Day – celebrated to bring more attention to public health and also to recognize the contribution of the patients and healthcare professionals who make clinical research possible. At PatientsLikeMe, it’s members who are changing the way clinical trials are designed. Bringing the patient voice to clinical trials has long been part… Continue reading It’s Clinical Trials Day, and patients are driving change
The record on research: Catching up with TOA member Cris
Back in January we introduced Cris, a member of the 2016-2017 PatientsLikeMe Team of Advisors living with ALS. She’s also a fierce patient advocate who’s participated in several clinical trials since her diagnosis. We recently caught up with her to learn about her experience with clinical trials and why access and awareness of clinical trials… Continue reading The record on research: Catching up with TOA member Cris
The power of your data: Improving clinical trials
For these 24 Days of Giving, we’re rethinking what it means to give and how the power of patient data can change healthcare for the better. Another example of the impact your data can have? Making the clinical trial experience better for patients like you. Now let’s be real, that’s no short order. So where… Continue reading The power of your data: Improving clinical trials
PatientsLikeMe Launches Virtual Trial for ALS Patients
Study With Major Academic Medical Center to Evaluate the Potential of the Soy Peptide Lunasin to Reverse ALS Symptoms DURHAM, N.C., October 25, 2016—PatientsLikeMe and The Duke ALS Clinic have just completed enrollment in a virtual trial designed to test whether Lunasin, a peptide found in soy and some cereal grains, is helpful or harmful… Continue reading PatientsLikeMe Launches Virtual Trial for ALS Patients
Bringing the patient voice to clinical trials
PatientsLikeMe has a long tradition of bringing the patient voice into drug discovery and development, but it’s only been in the last year or two that industry has been tuning in to hear what that voice is saying about clinical trials. For the last 18 months, we’ve been asking many of our members about their… Continue reading Bringing the patient voice to clinical trials
14 questions to ask before you enroll in a clinical trial
Have you ever participated in a clinical trial? How much did you know going into it? Our partners over at the Center for Information and Study on Clinical Research Participation (CISCRP) came up with a whole list of questions that will help you decide if a clinical trial is right for you before you commit.… Continue reading 14 questions to ask before you enroll in a clinical trial