Our partner Marisa Zeppieri-Caruana, founder of LupusChick, blogs about healthy cooking and living with lupus and other chronic conditions. Check out this gluten-free, dairy-free recipe she wanted to share with the lupus community (or anyone who’d like to try it) before berry season winds down! One of my favorite aspects about summer is seeing berries… Continue reading GF + DF recipe from LupusChick: Berry Bliss Smoothie Bowl
Category: Patient Experiences
75k [virtual] hugs on PatientsLikeMe – and how social connections are good for your health
Newsflash: “Social Interaction Is Critical for Mental and Physical Health,” as The New York Times recently reported. Decades of research support the theory that social connections can have a positive effect on your health. Having social ties may help prevent illness and is still a boon to your health when you’re sick or living with… Continue reading 75k [virtual] hugs on PatientsLikeMe – and how social connections are good for your health
Want to know more about Radicava (edaravone)? Here’s a snapshot:
With the recent FDA approval of Radicava (edaravone), we wanted to know more about how it works and what it means for patients living with ALS. We asked Maria Lowe, Pharm.D., BCPS, and our Health Data Integrity team, to give us a snapshot of the drug, how it’s used and what you should know. Maria’s rundown… Continue reading Want to know more about Radicava (edaravone)? Here’s a snapshot:
5 tips for practicing self-care when your chronic illness is trying to take over
As a woman with bipolar disorder I and PTSD, I can pretty safely say that no two days are the same. There are days when the world is sunshine and roses; life is grand! Then there are days when the inside of my brain is trying to run the show without me, and it’s leaving… Continue reading 5 tips for practicing self-care when your chronic illness is trying to take over
New graphic: See (and add to) the power of 60+ #MoreThan stories
What are all the roles you play in life beyond “patient”? When we kicked off the #MoreThan campaign – asking our members about all the ways they’re more than their diagnoses – we didn’t know just how many stories we’d hear. This new graphic captures what the PatientsLikeMe community has shared so far – about… Continue reading New graphic: See (and add to) the power of 60+ #MoreThan stories
Ocrevus: You asked, we answered
Last month, we asked the MS community to share their questions about Ocrevus. Now, PatientsLikeMe’s Maria Lowe, Pharm.D., BCPS, sheds more light on what it is, how it works and what patients need to know. Maria’s rundown is meant to give you more context so you can have better conversations with your care team –… Continue reading Ocrevus: You asked, we answered
The “chicken-and-egg” relationship between pain and depression
Fifty percent of people with chronic pain also have depression, pain management experts say. And more than 75 percent of patients with depression report pain-related symptoms (such as headaches, stomach pain, neck and back pain), according to the World Health Organization. The pain/depression connection raises a lot of questions for some people who experience both:… Continue reading The “chicken-and-egg” relationship between pain and depression
PatientsLikeMe names Greg Ploussios Senior Vice President and General Counsel
CAMBRIDGE, Mass., August 2, 2017—PatientsLikeMe announced today that it has named Greg Ploussios to the newly-created role of Senior Vice President and General Counsel. Prior to joining PatientsLikeMe, Ploussios served as the company’s outside counsel for over a decade, advising and negotiating PatientsLikeMe’s licensing, collaboration and commercial agreements and representing the company in equity financing,… Continue reading PatientsLikeMe names Greg Ploussios Senior Vice President and General Counsel
Working with a condition: Your rights and options for sharing with your employer and taking leave
Have you ever struggled with managing your health condition(s) while holding down a job? Or worried about missing too much work because of your unpredictable symptoms? Team of Advisors member Hetlena (TheLupusLiar) is living with lupus and is very interested in the topic of balancing work with a chronic health condition. She helped us develop… Continue reading Working with a condition: Your rights and options for sharing with your employer and taking leave
“I promise not to look upon myself with the scornful eyes of my past” – PatientsLikeMe’s Becca shares her promise
Becca Getto is an Associate Product Manager at PatientsLikeMe, and is recovering from an eating disorder. During her time in Monte Nedo Laurel Hill treatment program, she wrote a poetic and moving promise to herself, and in it she shares her past struggles and hopes for the future. Becca is more than her condition: she’s… Continue reading “I promise not to look upon myself with the scornful eyes of my past” – PatientsLikeMe’s Becca shares her promise