Everyone needs it, but sometimes the hardest thing to do is to ask for help. Opening yourself up to feeling vulnerable, especially when you are already feeling compromised by your condition, can be challenging. It is important to remember; you do not have to shoulder it alone. Your chronic health condition may force your hand… Continue reading How to Ask for Help
Tag: community
9 mental health podcasts worth listening to
Podcasts are an easy (and usually free) way to stay on top of what’s new across a wide variety of topics — they’re kind of like internet radio on demand, and usually broken up into episodes that you can download on your computer, device or phone. Below, we rounded up 9 podcasts focused on mental… Continue reading 9 mental health podcasts worth listening to
Finding answers from the community: Members helping members
Offering words of encouragement. Sharing advice. Just being there to listen. Over the years, we’ve seen countless examples of members supporting each other (did you know there’s more than a 100K posts that mention the word “thank you”?). Check out some of the ways members are stepping up and lending a hand. Life-changing advice: Get… Continue reading Finding answers from the community: Members helping members
Creating communities, on and off PatientsLikeMe
More than half a million members, connecting 365 days a year, sharing countless health insights and words of support. Communities like this one are built on communication. And every day, patients like you are finding new ways to connect and enrich your community. From in-person meet-ups to live-streaming support groups and off topic threads, patients… Continue reading Creating communities, on and off PatientsLikeMe
75k [virtual] hugs on PatientsLikeMe – and how social connections are good for your health
Newsflash: “Social Interaction Is Critical for Mental and Physical Health,” as The New York Times recently reported. Decades of research support the theory that social connections can have a positive effect on your health. Having social ties may help prevent illness and is still a boon to your health when you’re sick or living with… Continue reading 75k [virtual] hugs on PatientsLikeMe – and how social connections are good for your health
“Everyone needs a “Me too!” moment” – Member Shannon on exposing her truth
“With every part of me that becomes less than what it used to be, a different part of me usually becomes more than what it used to be. In fact, maybe that’s the point, but it doesn’t make it any less difficult.” Shannon (Sna2164) is a wife, mother, animal lover and writer, living in southern California. She was officially… Continue reading “Everyone needs a “Me too!” moment” – Member Shannon on exposing her truth
Going global for World MS Day
It’s World MS Day and this year we checked in with the global MS community to see how members around the world are living with MS. Here’s what they had to say: “MS is very rare in India. I’m from North India, known as Kashmir, a very beautiful place and it’s rightly known as… Continue reading Going global for World MS Day
“There were so many people asking the things that I was too afraid to ask”
It’s the 10-year anniversary of the MS community, and we’re sharing a story from one of our members, Jackie (OldSalt). Jackie was diagnosed with relapsing-remitting multiple sclerosis (RRMS) in 2007 and more recently, her condition transitioned to secondary progressive MS (SPMS). She found PatientsLikeMe in 2008 and believes that being part of the site over… Continue reading “There were so many people asking the things that I was too afraid to ask”
Meeting PF patients where they are
Say hello to John (John_R), a father, grandfather and idiopathic pulmonary fibrosis (IPF) survivor. Sound familiar? Last year he shared his story about life after a double lung transplant and the importance of considering a lung transplant early. This year, John started a Facebook group to live-stream pulmonary fibrosis (PF) support group meetings and conferences.… Continue reading Meeting PF patients where they are
#NotAlone Recap: On PatientsLikeMe, no one is alone…
As our #NotAlone campaign wraps up, we hope you’ve been encouraged by the thoughts and personal stories of how other members have felt less alone by learning, connecting and tracking on the site. We recently had a look at all the member posts in the #NotAlone forum and wanted to share some highlights with you!… Continue reading #NotAlone Recap: On PatientsLikeMe, no one is alone…