Just about two years ago, nearly 600 members of the PatientsLikeMe community completed a survey called the Diabetes Distress Scale (DDS), a 17-item questionnaire which measures the amount and types of problems diabetes can cause in a person’s life. And today, we’re throwing it back to the summary of the results. Here’s what Dr. William Polonsky,… Continue reading Throwback Thursday: Diabetes and stress
Category: Conditions
Living with a health condition? On the PatientsLikeMe blog, find helpful health information and patient stories about being diagnosed, trying different treatments, and living day-to-day with a chronic condition.
“I can see that there actually is help here.” – JustinSingleton shares his experiences with PTS
JustinSingleton is an Army veteran who recently joined PatientsLikeMe back in June, and he’s been exploring the veteran’s community ever since. This month, he wrote about his experiences in an interview, and below, you can read what he had to say about getting diagnosed with PTS, managing his triggers and the importance of connecting and… Continue reading “I can see that there actually is help here.” – JustinSingleton shares his experiences with PTS
Q & A with Mary Ann Singersen, Co-Founder/President of the A.L.S. Family Charitable Foundation
In 1998, Stephen Heywood, the brother of our co-founders Ben and Jamie, and friend of Jeff Cole, was diagnosed with ALS. They immediately went to work trying to find new ways to slow Stephen’s progression, and after 6 years of trial and error, they built PatientsLikeMe in 2004. Mary Ann Singersen also has family experience… Continue reading Q & A with Mary Ann Singersen, Co-Founder/President of the A.L.S. Family Charitable Foundation
Throwback Thursday: Dr. Steve Feldman speaks about psoriasis and medication adherence
In honor of Psoriasis Awareness Month, we’re throwing it back to January 2013, when we sat down with Steve Feldman, MD, PhD, and Professor of Dermatology, Pathology & Public Health Sciences at Wake Forest University School of Medicine. In his interview, he spoke about the challenges for psoriasis patients, as well as the treatment advances… Continue reading Throwback Thursday: Dr. Steve Feldman speaks about psoriasis and medication adherence
Getting ready for psoriasis awareness
Image courtesy of the National Psoriasis Foundation Tomorrow is the official start of Psoriasis Awareness Month. The National Psoriasis Foundation (NPF) wants people with psoriasis to know they are not alone: Over 7.5 million people in the U.S. have been diagnosed with the condition, and more than 4,800 people with psoriasis are sharing what it’s like on PatientsLikeMe.… Continue reading Getting ready for psoriasis awareness
Spoons and forks – not just for summer picnics
There are a ton of activities to do during the “lazy, hazy, crazy days of summer.” And whether you’re living with a chronic condition or not, it’s good to learn how to manage your energy. Christine Miserandino, who lives with lupus, created her “Spoon Theory” as a way to think about how much energy we… Continue reading Spoons and forks – not just for summer picnics
Food for Thought: July (chocolate) edition, take 2
Last year, July’s Food for Thought revolved around MS members sharing their experiences with chocolate. This year, we thought we’d continue the tradition – check out what a few members had to say about their relationships with the delicious sweet: “I have been trying a dairy free diet for a couple of months due to… Continue reading Food for Thought: July (chocolate) edition, take 2
The Patient Voice- PTS member David shares his story
Today is PTS Awareness Day, so we wanted you to meet PatientsLikeMe community member Cpl. David Jurado, who lives with post-traumatic stress (PTS). David developed PTS while serving in the military. After he retired, he continued to deal with daily symptoms, and he encourages members to connect with others on PatientsLikeMe, because “if you want… Continue reading The Patient Voice- PTS member David shares his story
Patient, caregiver, wife and mother – Georgiapeach85 shares about her experiences with MS and her husband’s PTS
Ashleigh (Georgiapeach85) is a little bit different than your typical PatientsLikeMe member – not only is she living with multiple sclerosis, she also a caregiver for her husband Phil, who has been diagnosed with PTS. In her interview, Ashleigh shares her unique perspective gained from her role as a patient and caregiver, and how PatientsLikeMe… Continue reading Patient, caregiver, wife and mother – Georgiapeach85 shares about her experiences with MS and her husband’s PTS
Recapping with our Team of Advisors!
Many of you will remember meeting our inaugural Team of Advisors from when we first shared about this exciting team last year! This group of 14 were selected from over 500 applicants in the community and have been incredible in their dedication and desire to bring the patient voice directly to PatientsLikeMe. As the team… Continue reading Recapping with our Team of Advisors!